Patient advocacy groups in your area
Foundation fighting for blindness
Get the latest update on all therapies for low vision including retinitis pigmentosa. Learn more about free genetic testing and find your chapter.
https://www.fightingblindness.org/chapters#find-your-local-chapter-891
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Enroll and register for this registry to 1. get your genetic testing for free and 2. qualify for the latest treatment.
https://www.oc-meridian.com/Desktop/Portal/Signup?id=ffb
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Keep up to date with the latest clinical trials.
Department of rehabilitation in California
Get your lifestyle support and adjustments here. Learn all the vision-assisted training and tools here in CA.
https://www.dor.ca.gov/Home/BlindFieldServices
Earle Baum Center
Provides remote resources and will advocate for your resource independent living. Susan Hirshfield, PhD – is an amazing Independent Living Specialist, Service Counselor. She advocated for my adaptive technologies and made sure I got what I needed.
lighthouse for the blind and visually impaired
A bay area service where I started getting my mobility and orientation training, vision cane, and assisted technologies. They will work with you in all aspects of your life to make sure you are equipped to live independently and continue to grow in your career. Click on their names to reach out to them.
Erin Lauridsen is amazingly knowledgeable and lighthearted in helping others know the latest and the greatest technology out there.
Robert Alminana taught me everything there is to know about orientation and mobility while giving me the confidence to navigate on my own.
national federation of the blind
Please find your local chapters in this link below.
https://www.nfb.org/about-us/state-affiliates
vision aware
Informational vision service for independent living.
https://visionaware.org/?fbclid=IwAR2RBhbNRF0N7MVKiYH4ksn5aeRpegm2KB4pnF5Ll74njfXk7AejsI-9DeA