Tell us your story of your vision loss. We can learn so much from each other and I will continue to share the data here.

Join a global community of individuals affected by retinitis pigmentosa. Get emotional support while staying in touch with the latest research on retinitis pigmentosa.

Join our community of patients, parents, scientists, and entrepreneurs on sharing insights and experiences in their cure odyssey.

Searching for communities for rare diseases here.

I love sewing and it’s my way to make custom clothes that has lights embedded in them. Sam from The Blind LIfe does an amazing job of sharing how he’s able to overcome these challenges with a few good simple tools.