patient perspective for Rare disease day panel

I’ll be sharing my personal journey with retinitis pigmentosa on Rare Disease Day on Thurs 2/24 9am EST. Please register below and listen in on the latest treatments, patient advocacy, and lifestyle resources.

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Retrospection: it was fun to be on the panel and nerve recking. I was the only one providing a patient perspective on a very research-driven panel. I had the opportunity to share my perspective and why building cures in a customer/patient-centric manner can only help your innovation. As someone who has built B2C products, often companies forget the patients and think they can cure the disease. But the success also lies in patient compliance and acceptance of the treatment as well the cost. In sharing the patient perspective, I hope to share not just patient insights but help engineer and design therapies that work from the business model side.

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Innovation in Rare Disease: Making Progress with Cell & Gene Therapies

https://www.syneoshealth.com/events/rare-disease-day-2021